Health and Logistical Update
Mother Jones
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Howdy everyone. I’m back. But I’ll bet you didn’t even know I was gone.
I spent most of the day up at City of Hope in Duarte getting a few final tests plus a final visit with my transplant physician before I go up next week for the final stage of chemo. For those who are interested, here’s my final and (hopefully) firm schedule.
On Monday I go up to CoH and check in to the Village. This sounds like something from The Prisoner, but it’s actually just a small collection of houses on the grounds of the campus. Unless something goes wrong that requires round-the-clock observation and care, this is where I’ll be staying. It’s obviously nicer and more convenient than being cooped up in a hospital room, and it comes complete with its own kitchen so I’m free to make my own meals if I want. (I can also order out from the hospital cafeteria if I don’t feel like cooking my own stuff.)
On Tuesday and Wednesday I go into the Day Hospital for an infusion of high-dose Melphalan, a powerful chemotherapy drug. This will kill off all my remaining cancerous bone marrow stem cells, and, along the way, kill off all my healthy stem cells too. So on Thursday they’ll pump my own frozen stem cells back into me.
And that’s about it. Within a few days of all this I’ll be laid low with fatigue, mouth sores, and loss of hair—and hopefully not much more, since that would require transfer to the hospital, which I’d sure like to avoid. For the two weeks after that, I’ll take a wide variety of medications and check into the Day Hospital every morning for testing and whatever else they deem necessary (for example, IV fluids if I’m not drinking enough). The rest of the time I spend in my little house, waiting for my immune system to recover enough for me to be sent home.
That will take me through the middle of May, at which point I should be in fairly reasonable shape. Full and complete recovery will take longer—possibly quite a bit longer—but that’s unknowable at this point. I’ll just have to wait and see.
The next time you see me after this weekend I’ll be bald as an egg, as any true cancer patient should be. Yes, there will be pictures. I wouldn’t deprive you of that. Between now and then, wish me luck.
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